Wednesday, March 18, 2009

Endometriosis?

I spoke with my endometriosis doctor the other day. He thought having an endoscopy would be a good idea, he is interested in what they find. I told him the pain flares have been coming at the end of each month. I asked him if it could be endometriosis and he said it could. He said that if I have another bad pain flare that he wants to put me on Danazol. Ever since I talked to him I have been a bit depressed.

I also have been dealing with vaginal pain for a few days. I have lived with it for 10 years. When it comes on it irritates my bladder and I have a constant feeling that I have to go to the bathroom. When I had surgery with my endometriosis doctor they checked my bladder and said it was healthy, no disease. I had one doctor tell me that the pain was nerve damage from the hysterectomy I had. I guess he is right. So that pain along with my intestinal pain has me feeling pretty miserable.

6 comments:

Anonymous said...

I had that EXACT problem and it turned out to be nerve damage too. It eventually went away after a couple years of it!

candy

Anonymous said...

Check out some endo expert sites. Most re's / ob/ gyn's and other docs do not know how to treat endo. It won't usually show up with GI stuff. Also, have you heard of IC, interstitial cystitis? it affects your bladder and can cause pain. If you try an IC diet (google the info) it can help you with that pain.

Here are some really good sites. You can get excision docs to give you a records review, sometimes they do it free (like the CEC). There is help out there.

centerforendo.com

endometriosissurgeon.com

pelvicpain.com

endoexcision.com

endometriosis.org

endo-resolved.com

erc.activboard.com/

naprotechnology.com

Anonymous said...

you might want to google 'pelvic pain' or 'vaginal pain,' weirdly, i found that eating peanut butter made my pelvic pain worse

so did citrus (that's the IC)

Anonymous said...

i read a little more of your blog....endo can cause bowel problems...

i had endo on the bowel, on the bladder, all kinds of places! adhesions from endo can also cause problems...

Rachel Smith said...

I am so sorry to here that you are not feeling well. I said a prayer for you.

Sue said...

Becky, I am so sorry! You have been through so much. I will be praying for you even more.